What do people with PMDD actually experience, and what can change when they receive structured, multidisciplinary support? This webinar presents findings from two interconnected studies: a large-scale qualitative investigation of PMDD lived experience, and preliminary data from an exploratory feasibility intervention study.
Summary
A qualitative study was conducted in partnership with IAPMD between 2022 and 2024, with 252 participants recruited through IAPMD and clinical and community networks. Six core themes emerged: the luteal phase as an unpredictable intrusion on identity and functioning; shame, stigma, and self-blame; identity disruption and self-doubt; relational impact on partnerships, parenting, and professional life; significant diagnostic delays and systemic failure; and a clear, unmet need for structure, understanding, and a clinical framework.
The exploratory feasibility intervention study that followed drew directly on these findings. The programme, delivered online over 12 weeks in 2023, integrated cognitive behavioural therapy (CBT), dialectical behaviour therapy (DBT), acceptance and commitment therapy (ACT), and compassion-focused therapy (CFT) with PMDD-specific psychoeducation, specialist input from a GP and a nutritionist, and a dedicated session on the relational impact of PMDD and communication strategies for participants, their partners, and loved ones.
After attending this webinar, participants will be able to:
- Better understand what people living with PMDD experience around the world.
- Learn about new research exploring ways to improve psychological support for PMDD.
- Understand how lived experiences can shape better research and healthcare.
